As I'm finally finding the time to sit down and write...all I'm thinking about is that at this time tomorrow, all of these thoughts that I'm having will be in the past. I can't believe that surgery day is actually here. We have gone through so much. Thinking back, I remember my fears of him getting his first tooth and being worried about him "chomping on his tube"...but all of those fears quickly went away as each "fear" became a reality...and all was ok.. I have to remind myself of that, as tomorrow quickly approaches. All will just be fine.....I still can't believe that I won't be traveling with a bag of meds, formula, tubes and syringes by tomorrow!! It's seems so surreal to me....My work as a Mother to get him healthy and strong enough to the point of surgery is complete. Tomorrow is up to him and his Doctors- and I have complete faith in both!
I'm so proud of Lentil. I can't believe all he has accomplished in just 4 short months. He will always amaze me. I know that he is a strong boy, and that is important going into our "adventure" tomorrow.
The plan for surgery is that we will arrive at the hospital at 7:30am. The drs believe the procedure will take about 3 hrs. Dental x-rays will be done first and if they feel it's necessary, he will then have a CT scan...it's all depending on what the x-rays show. His surgical team will consist of Dr John Lewis, Dr Alex Reiter and Dr Jesse Taylor (from CHOP)!! I couldn't have asked for a better team. Also in the room will be Dr Fulton (Lentil's primary vet) and Dr. Shana. Dr Fulton will oversee him through his recovery- which makes me happy because Lentil will be waking up to face that he has always known/loved.
Our focus for tomorrow is repairing the hard/soft palate. Although we now know he has a hiatal hernia....we are going to "pretend" it isn't there. He isn't showing any clinical signs of it, and the drs have already taken every precaution with lessening the risk of regurgitation, so we will worry about the hernia if/when it causes an issue. To fix the hard palate, they will create a flap of skin taken from one side of the roof of his mouth and suture it onto the other side (to seal that ridge), then they take skin and somehow create a soft palate. It amazes me with what they are capable of doing. They are confident they will fix everything in one try...but depending on how he heals, he may need further surgeries.
From the outside, our little Lentil will look exactly the same. I've opted to not do any cosmetic procedures, as I feel it's important for all of us to remember that it's OK to be different!!! It's ironic that so many people love him for the way that he looks, yet will still ridicule/judge a human for having the same difference!! This is one of the barriers that all of us need to break down together! We should celebrate each day loving each other for exactly who we are!!
I promise to keep everyone in the loop. As soon as I get info- I will pass it along to all of you! Think good thoughts for Lentil....and go out and do a good deed tomorrow in honor of him....it will help his good energy :) We are all in this together, and I won't forget that!
Some people have said that it seems as though our Facebook posts aren't showing up in their newsfeed...if you feel that way- from a desktop, go to Bean's page and put your cursor over the "like"button....be sure it says "show in newsfeed" on the screen that pops up. xoxo
Full speed ahead to tomorrow! I am going there with full confidence and many hopes for a speedy recovery! Thank you for all of the love and support. It's gotten us this far...and after our surgery tomorrow...our life together will truly begin! Lentil will be able to begin to accomplish what he was placed here to do! I'm excited for the future....and as for tomorrow....we will make it the Best Day Ever- because that's what we do!!!
Love you guys!!!